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DIGITAL-2024-CLOUD-DATA-A...
DIGITAL-2024-CLOUD-DATA-AI-06-GENOME: 1+ Million Genomes: sustainability and uptake
ExpectedOutcome:Deliverables and expected outcome
Sólo fondo perdido 2M €
Europeo
Esta convocatoria está cerrada Esta línea ya está cerrada por lo que no puedes aplicar. Cerró el pasado día 29-05-2024.
Se espera una próxima convocatoria para esta ayuda, aún no está clara la fecha exacta de inicio de convocatoria.
Hace 5 mes(es) del cierre de la convocatoria y aún no tenemos información sobre los proyectos financiados, puede que esta información se publique pronto.
Presentación: Consorcio Consorcio: Esta ayuda está diseñada para aplicar a ella en formato consorcio..
Esta ayuda financia Proyectos:

ExpectedOutcome:Deliverables and expected outcome

• Documentation agreed by Member States about ethical, legal, privacy-related and economic aspects of 1+MG implementation necessary to operate an EDIC on genomics.

• Sustainability roadmap for the EDIC

• Data on clinical utility and economic aspects of genomics (costs/savings) for economic models and policymaking.

• Frameworks for 1+MG data/metadata standards’ maintenance and data quality assurance.


Objective:The objective of this action is to enable sustainable operation and uptake of the European Genomic Data Infrastructure (GDI)77 that implements the EU Member States’ initiative 1+ Million Genomes (1+MG). According to statements by Member States’ representatives in 1+MG, establishing a European Digital Infrastructure Consortium (EDIC) to operate and maintain the European GDI is the preferred option for the sustainability of the initiative and data infrastructure. This action will support preparatory work for the creation and for the operation of an EDIC, facilitate strategic orientation of the 1+MG initiative and support expert work to enable the uptake of ge... ver más

ExpectedOutcome:Deliverables and expected outcome

• Documentation agreed by Member States about ethical, legal, privacy-related and economic aspects of 1+MG implementation necessary to operate an EDIC on genomics.

• Sustainability roadmap for the EDIC

• Data on clinical utility and economic aspects of genomics (costs/savings) for economic models and policymaking.

• Frameworks for 1+MG data/metadata standards’ maintenance and data quality assurance.


Objective:The objective of this action is to enable sustainable operation and uptake of the European Genomic Data Infrastructure (GDI)77 that implements the EU Member States’ initiative 1+ Million Genomes (1+MG). According to statements by Member States’ representatives in 1+MG, establishing a European Digital Infrastructure Consortium (EDIC) to operate and maintain the European GDI is the preferred option for the sustainability of the initiative and data infrastructure. This action will support preparatory work for the creation and for the operation of an EDIC, facilitate strategic orientation of the 1+MG initiative and support expert work to enable the uptake of genomics for healthcare and public health purposes, as well as the data aspects of the 1+MG Framework.


Scope:The action will support Member States’ work enabling creation and operation of an EDIC on genomics in line with the Decision (EU) 2022/2481 of the European Parliament and of the Council of 14 December 2022 establishing the Digital Decade Policy Programme 2030 and to prepare the future EDIC for playing a focal role in facilitating the uptake of genomics and the European genomic data infrastructure in the contexts of healthcare delivery and public health policy. The EDIC will play an essential role in the effort to ensure public trust in genomics, enable broad uptake by healthcare professionals, e.g. by enhancing digital skills and auxiliary data services, and to raise awareness among policymakers regarding the benefits of application and integration of genomics in healthcare systems’ services and in public health policy measures. The EDIC will also need to define its relationship with the EHDS. Finally, the EDIC is expected to be involved in the implementation of data-related guidelines constituting the 1+MG Framework, in particular regarding (meta)data standards and data quality assurance. To this end the action is expected to: 77 The European Genomic Data Infrastructure will be deployed by the GDI project funded under the Digital Europe programme (project number 101081813, topic DIGITAL-2021-CLOUD-AI-01-FEI-DS-GENOMICS). 67 • support workshops, working groups, meetings with private and public stakeholders, necessary for creating the EDIC for the 1+MG initiative and supporting its implementation roadmap, • make analysis and proposals on the necessary legal and ethical enablers and arrangements specific to this EDIC, • map the gaps, challenges and unmet needs, and propose the respective actions for the EDIC, as necessary to establish the EDIC sustainability roadmap including legal, ethical, organisational and economic aspects, and covering implementation for research, healthcare and public health purposes, • explore the implications of the European Health Data Space (EHDS) Regulation and operationalise the EDIC’s participation in the HealthData@EU infrastructure, • establish the evidence base for the health impact and economic implications of genomics (costs/benefits) to inform the relevant health economic models and health policy decisions, • explore models for public-private partnerships for genomics in healthcare, • maintain and promote the use of the Maturity Level Model (MLM) developed by the “Beyond 1 Million Genomes” (B1MG) project to ensure coordinated alignment across healthcare systems towards implementation and equity in access to genomics medicine, • design actions to promote the literacy level and education of citizens, health professionals and policy makers on genomic medicine across Europe, • establish frameworks that are necessary to ensure that the data made available to users via 1+MG meet the agreed data standards and data quality requirements, including specific roles for the EDIC. This action should build on / align with the outcomes of the B1MG and GDI projects and goals of the Genome of Europe project, while clearly defining its distinct scope and deliverables. In particular, the data infrastructure developed and deployed by the GDI project and the respective data governance will form the cornerstone of the future EDIC. The action should also take into account and leverage the synergies with the future European Health Data Space and the respective preparatory projects (e.g. TEHDAS, HealthData@EU pilot). Moreover, the results of other relevant past and ongoing projects under Horizon 2020, Horizon Europe, EU4Health and IMI2/IHI should be duly considered to avoid duplication of efforts.


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Temáticas Obligatorias del proyecto: Temática principal: The text describes an action to support the sustainable operation of the European Genomic Data Infrastructure (GDI) for the 1+ Million Genomes initiative. It aims to establish an European Digital Infrastructure Consortium (EDIC) for genomics, supporting the uptake of genomics for healthcare and public health, data quality assurance, and maintaining data standards.

Características del consorcio

Ámbito Europeo : La ayuda es de ámbito europeo, puede aplicar a esta linea cualquier empresa que forme parte de la Comunidad Europea.
Tipo y tamaño de organizaciones: El diseño de consorcio necesario para la tramitación de esta ayuda necesita de:

Características del Proyecto

Requisitos de diseño: *Presupuesto para cada participante en el proyecto
Requisitos técnicos: The expected impacts of the project include: establishing a sustainable European Genomic Data Infrastructure, facilitating the uptake of genomics in healthcare and public health, ensuring public trust in genomics, enhancing digital skills among healthcare professionals, raising awareness among policymakers, defining the relationship with the EHDS, implementing data-related guidelines, and promoting literacy on genomic medicine. The project aims to support the creation and operation of a European Digital Infrastructure Consortium (EDIC) for the 1+ Million Genomes (1+MG) initiative in line with EU policies and guidelines, while aligning with existing projects like GDI and Genome of Europe. The expected impacts of the project include: establishing a sustainable European Genomic Data Infrastructure, facilitating the uptake of genomics in healthcare and public health, ensuring public trust in genomics, enhancing digital skills among healthcare professionals, raising awareness among policymakers, defining the relationship with the EHDS, implementing data-related guidelines, and promoting literacy on genomic medicine. The project aims to support the creation and operation of a European Digital Infrastructure Consortium (EDIC) for the 1+ Million Genomes (1+MG) initiative in line with EU policies and guidelines, while aligning with existing projects like GDI and Genome of Europe.
Capítulos financiables: Los capítulos de gastos financiables para esta línea son:
Personnel costs.
Subcontracting costs.
Purchase costs.
Other cost categories.
Indirect costs.
Madurez tecnológica: La tramitación de esta ayuda requiere de un nivel tecnológico mínimo en el proyecto de TRL 9:. La tecnología está en su forma final y funciona bajo una amplia gama de condiciones. + info.
TRL esperado:

Características de la financiación

Intensidad de la ayuda: Sólo fondo perdido + info
Fondo perdido:
0% 25% 50% 75% 100%
Para el presupuesto subvencionable la intensidad de la ayuda en formato fondo perdido podrá alcanzar como minimo un 100%.
The funding rate for CSA projects is 100 % of the eligible costs for all types of organizations. The funding rate for CSA projects is 100 % of the eligible costs for all types of organizations.
Garantías:
No exige Garantías
No existen condiciones financieras para el beneficiario.

Información adicional de la convocatoria

Efecto incentivador: Esta ayuda no tiene efecto incentivador. + info.
Respuesta Organismo: Se calcula que aproximadamente, la respuesta del organismo una vez tramitada la ayuda es de:
Meses de respuesta:
Muy Competitiva:
No Competitiva Competitiva Muy Competitiva
El presupuesto total de la convocatoria asciende a
Presupuesto total de la convocatoria.
Minimis: Esta línea de financiación NO considera una “ayuda de minimis”. Puedes consultar la normativa aquí.
Certificado DNSH: Los proyectos presentados a esta línea deben de certificarse para demostrar que no causan perjuicio al medio ambiente. + info

Otras ventajas

Sello PYME: Tramitar esta ayuda con éxito permite conseguir el sello de calidad de “sello pyme innovadora”. Que permite ciertas ventajas fiscales.