Digital Good
Financiado
The Digital Disruption of Health Research and the Common Good. An Empirical Phil...
The Digital Disruption of Health Research and the Common Good. An Empirical Philosophical Study
In the last three years, every major consumer technology company has moved into the health research domain. We are witnessing a digital disruption of health research, or a Googlization of health research (GHR). This project will b...
In the last three years, every major consumer technology company has moved into the health research domain. We are witnessing a digital disruption of health research, or a Googlization of health research (GHR). This project will be the first wide-ranging, interdisciplinary study of GHR. Its aim is to develop a normative framework for personal health data governance in this setting, where digital health and digital capitalism, and codes of research ethics and the lawlessness of the Internet economy, intersect.
I contend that the most pressing challenge at stake in this new model of research is less the question of individual privacy than the question of collective and societal welfare, and that existing governance frameworks that seek to increase individual control over data are ill-suited to address this. Commons- and solidarity-based approaches, which seek to enhance collective agency and control, are thus promising alternatives. However, these approaches allow for only one conception of the common good, while a plurality of competing conceptions are at work in GHR, including increased efficiency, greater inclusivity, and economic growth. This plurality must be taken seriously to avoid theory-practice discrepancies and to develop viable governance solutions.
The project will develop a normative framework that can both foreground collective benefit all the while accounting for this ethical plurality. To do this, my team will first map the different conceptions of the common good – or moral repertoires – that motivate actors in several GHR-type collaborations. Using an empirical-philosophical methodology, we will critically evaluate these repertoires and the value trade-offs they involve in practice. Next, we will explore the viability of commons- and solidarity-based approaches in light of this. Finally, these results will be integrated into a novel, empirically-robust normative framework that can offer guidance to research ethicists and policy makers.
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Duración del proyecto: 66 meses
Fecha Inicio: 2018-12-13
Fecha Fin: 2024-06-30
Fecha Fin: 2024-06-30
Línea de financiación: concedida
El organismo H2020 notifico la concesión del proyecto el día 2024-06-30
Línea de financiación objetivo
El proyecto se financió a través de la siguiente ayuda:
ERC-2018-STG:
ERC Starting Grant
Cerrada
hace 7 años
Presupuesto
El presupuesto total del proyecto asciende a
1M€
Líder del proyecto
STICHTING RADBOUD UNIVERSITEIT
No se ha especificado una descripción o un objeto social para esta compañía.
Perfil tecnológico
TRL
4-5
Perfil tecnológico
TRL
4-5
222.13K€ |
Participante