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PanCareSurPass

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PanCare studies of the scale up and implementation of the digital Survivorship P...

PanCare studies of the scale up and implementation of the digital Survivorship Passport to improve people centred care for childhood cancer survivors Almost 500,000 former childhood cancer patients (CCS) are now living in Europe. Compared to the general population, CCS represent a vulnerable population as they are at an increased risk of developing health problems, known as lat... see more

28/02/2025

UMC-Mainz

4M€

Project Budget: 4M€

Project leader

UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERGUN... No se ha especificado una descripción o un objeto social para esta compañía.

TRL 4-5

PARTICIPATION DEPralty Sin fecha límite de participación.

Ver 22 Participantes

Financing granted El organismo H2020 notifico la concesión del proyecto The day 2025-02-28

SC1-DTH-13-2020: Implementation research for scaling... Specific Challenge:People-centred care is one of the main goals of health systems[1]. It relates to...

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22 Participantes

UMC-Mainz

580.10K€ | Leader

ALTTOGLASS SA

212.14K€ | participant

BALDOCER

265.80K€ | participant

SAN ALF QUIMICAS

519.66K€ | participant

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Project duration: 49 months Date Start: 2021-01-21
End date: 2025-02-28

Project leader

UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERGUN... No se ha especificado una descripción o un objeto social para esta compañía.

TRL 4-5

Project Budget 4M€

participation deadline Sin fecha límite de participación.

Project description Almost 500,000 former childhood cancer patients (CCS) are now living in Europe. Compared to the general population, CCS represent a vulnerable population as they are at an increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. Many survivors are unaware of their personal risk for specific late effects, which reduces their ability to manage their own follow-up care. Similarly, their treating healthcare professionals (HCPs) lack information about care required for CCS and access to treatment data from their childhood cancer. The Survivorship Passport (SurPass) is an innovative, digital tool, developed in previous EU-funded projects, that can be used to overcome these knowledge gaps to improve people-centred long-term survivorship care. Importantly, end users (CCS, HCPs) are integral to the research, represented by three key stakeholder networks (PanCare, SIOP Europe, CCI Europe). PanCareSurPass will conduct a robust assessment of the implementation of the SurPass by first conducting a pre-implementation study in six countries (Austria, Belgium, Germany, Italy, Lithuania, Spain) representing three infrastructural scenarios in Europe. Ethical, structural, organisational, economical, national, local, privacy issues, health systems, and particular national circumstances will be taken into account throughout. An Implementation Strategy will be developed and the SurPass will be updated and validated before use in an implementation study in the six countries. The study will look at a range of outcomes including CCS activation and empowerment, CCS/HCP satisfaction with the tool, feasibility and health economics. Based on the results of the study, a Prediction Model will be developed to promote and support future implementation of the SurPass across Europe.

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