In Touch Implementation of a person centered palliative care iNtervention To im...
In Touch Implementation of a person centered palliative care iNtervention To imprOve comfort QUality of Life and social engagement of people with advanced dementia in Care Homes
Challenge. Caring for the increasing numbers of people across Europe with advanced dementia and palliative care needs who live in care homes is difficult and demanding. People with advanced dementia can be immobile, non-verbal and...
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31/12/2028
Líder desconocido
6M€
Presupuesto del proyecto: 6M€
Líder del proyecto
Líder desconocido
Fecha límite participación
Sin fecha límite de participación.
Financiación
concedida
El organismo HORIZON EUROPE notifico la concesión del proyecto
el día 2023-11-29
Este proyecto no cuenta con búsquedas de partenariado abiertas en este momento.
Información adicional privada
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Información proyecto In-Touch
Duración del proyecto: 61 meses
Fecha Inicio: 2023-11-29
Fecha Fin: 2028-12-31
Líder del proyecto
Líder desconocido
Presupuesto del proyecto
6M€
Fecha límite de participación
Sin fecha límite de participación.
Descripción del proyecto
Challenge. Caring for the increasing numbers of people across Europe with advanced dementia and palliative care needs who live in care homes is difficult and demanding. People with advanced dementia can be immobile, non-verbal and unable to take part in day-to-day activities. They can be unsettled or agitated, with low quality-of-life and elevated levels of discomfort. Family members can find it difficult to connect meaningfully with their relative and are anxious about the future. Care staff can struggle to provide care other than for basic needs such as feeding, toileting and skin care.
Solution. An ethically sound solution which advances beyond the science, providing both care ‘in-the moment’ (using Namaste Care) and planning for future care needs (using the Family Carer Decision Support ‘Comfort Care’ approach). We call this the In-Touch intervention. Plan. To deliver a cross-country cluster randomised controlled trial of the In-Touch intervention in 56 nursing care homes across 7 countries to determine its effect on comfort, social engagement and quality of life. This is supported by 9 work packages ensuring that: the intervention is robustly planned and contextualised for different country settings; there is understanding of how it is delivered, and what people experience and ethically value about the intervention; the cost-effectiveness is understood; we have effective plans to transfer knowledge about this intervention if it is successful.
Impact. This intervention could herald a major change in the way that care for people with advanced dementia, in the palliative phase of their illness, is provided across Europe. People with advanced dementia should have better quality of life as they approach death, improved engagement and reduced social isolation. Care staff will have an ethically sound and evidence-based intervention that is cost-effective to implement, with family members more involved in, and knowledgeable about, comfort care and future care plans.