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HarmonicSS

Financiado

Cerrado

HARMONIzation and integrative analysis of regional national and international C...

HARMONIzation and integrative analysis of regional national and international Cohorts on primary Sjögren s Syndrome pSS towards improved stratification treatment and health policy making HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform... ver más

31/12/2020

UOA

10M€

Presupuesto del proyecto: 10M€

Líder del proyecto

ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINO... No se ha especificado una descripción o un objeto social para esta compañía.

TRL 4-5

Fecha límite participación Sin fecha límite de participación.

Ver 40 Participantes

Financiación concedida El organismo H2020 notifico la concesión del proyecto el día 2020-12-31

SC1-PM-04-2016: Networking and optimising the use o... Specific Challenge:Population cohorts are invaluable resources to obtain detailed description of ind...

I+D

Cerrada hace 9 años

0% 98% 100%

Características del participante

Este proyecto no cuenta con búsquedas de partenariado abiertas en este momento.

Información adicional privada

No hay información privada compartida para este proyecto. Habla con el coordinador.

40 Participantes

UOA

761.25K€ | Lider

UNIPG

275.79K€ | Participante

RESEARCH UNIVERSITY INSTITUT...

411.25K€ | Participante

HELLENIC MEDITERRANEAN UNIVE...

202.50K€ | Participante

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Duración del proyecto: 48 meses Fecha Inicio: 2016-12-01
Fecha Fin: 2020-12-31

Líder del proyecto

ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINO... No se ha especificado una descripción o un objeto social para esta compañía.

TRL 4-5

Presupuesto del proyecto 10M€

Fecha límite de participación Sin fecha límite de participación.

Descripción del proyecto HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform with open standards and tools, designed to enable secure storage, governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. The overall idea of the HarmonicSS project is to bring together the largest well characterized regional, national and international longitudinal cohorts of patients with Primary Sjögren’s Syndrome (pSS) including those participating in clinical trials, and after taking into consideration the ethical, legal, privacy and IPR issues for sharing data from different countries, to semantically interlink and harmonize them into an integrative pSS cohort structure on the cloud. Upon this harmonized cohort, services for big data mining, governance and visual analytics will be integrated, to address the identified clinical and health policy pSS unmet needs. In addition, tools for specific diagnostic procedures (e.g. ultrasonography image segmentation), patient selection for clinical trials and training will be also provided. The users of the HarmonicSS platform are researchers (basic/translational), clinicians, health policy makers and pharma companies. pSS is relevant not only due to its clinical impact but also as one of the few model diseases to link autoimmunity, cancer development (lymphoproliferation) and the pathogenetic role of infection. Thus, the study of pSS can facilitate research in many areas of medicine; for this reason, the possibility for sustainability and expandability of the platform is enhanced. Moreover, pSS has a significant impact on the healthcare systems, similar to that of rheumatoid arthritis.

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